AMAZING  ALEC
  • Home
  • Blog
  • Alec's Love
  • Cassidy's page
  • Al's favorites
  • Pictures
  • Contact Us

SWEET  POTATA

5/31/2012

6 Comments

 
Alec  had to get eye exams just about every 3 months , ever since he was a baby.  His opthalmologist was Dr. Dagi at Children's Hospital, she was always his Dr. We saw her when we were admitted in Children's, I remember waiting forever in the waiting area, Keith and I taking turns snuggling Alec, wondering why in the world were we sitting here having to do this.
The Doctors needed to check his optic nerve, because the tumor was on his optic nerve, and to try to check his vision. We first met Sarah, not sure her title, but she tested Alec with the stripes on cards to see if he looked at them. Then we met Dr. Dagi, she let us know with the look in her eyes and her words that she was so  heartbroken for us.  Then she had us hold Alec so she could look , it was so painful for us to make Alec go through this, he was wailing. I'm not sure if it was at this visit or the next few, but she told us there was no color to his optic nerve, we were not sure what that meant, but knew it was not good. However as long as we had Alec, his eyesight or lack of did not matter. We of course were sad for him.  There was a time when we were playing with Alec at home,  and we noticed that he did not respond to anything we put in front of him, he did not look. We knew then, that he didn't see, he was blind. Which is probably what no color on the optic nerve meant.  As time went by , we started to notice that Alec was looking at things, and seeing them. On his next visit with Dr. Dagi, she said some color had returned to his optic nerve, which I believe she said just doesn't happen. She was very happy to share this news with us. We could tell that she knew she was witnessing a miracle.
 
Alec was legally blind, but he could see. The amount of vision he had was so minimal, but one would never know that, even we forgot how little vision he had because  he made it look like he could see with perfect eyesight. He got around pretty well and he would see things that would shock us--we always thought his vision was getting better.
 
Alec never liked going to have his eyes checked, he hated the drops or spray they put in, it would always be the first thing he asked when we got to an appointment, "Do I have to have drops". When they said no, he didn't need them, he was so happy and relieved. When they said yes, it was tough, he didn't like it, but he did it so bravely.
 He did love to see Sarah, and would ask for her every time, and get so excited to have her check his visual acuity, he loved to talk to her and ask her questions. She was always so kind and gentle and Al always made her smile and laugh.
 But the main reason that Alec was willing to go the eye Dr. was to hear Dr. Dagi call him, "Sweet Potata" , she has always called him that, from infant all the way through. Alec love,loved, loved it;  he just sat there waiting for her to call him Sweet Potata. She'd say " Hi Sweet Potata", and Alec would get the biggest smile on his face, that's all he needed.  She did not even realize this, I think I had to tell her every time how much he loved it. She said she was from the south and that was a term of endearment they use.
 

We always had our routine, get to the eye appt. a few minutes early, so Al could play with the toys, see Sarah (hopefully), get drops (unfortunately), eat lunch while we wait for Dr. Dagi, get eyes checked, get called Sweet Potata,  stop at dollar tree for a surprise, then pick up Taa (Cassidy) from school.
 
I just heard a lady  (on the Nate Berkus show)  call Nate a "Sweet Potata". I had never heard anyone else call someone that except Dr. Dagi to Al.
(neither did Nate, he asked her what it meant and she said it's like Cutie Pie) 
6 Comments
Beth
5/31/2012 03:48:56 am

That was yet another way of Alec showing you Hey Zm
Mom I'm here watching tv with you!!!!
Xoxo

Reply
nicole
5/31/2012 04:14:16 am

Still reminds me of all the "little" things that made him so happy. The smallest simplest things to you and I , were huge for him. Glad you got a sign today.

Reply
Holly
5/31/2012 05:09:31 am

Alec was the biggest "sweet potata!" there ever was!! Thanks for the smile again today.

xoxo

Reply
Cara
5/31/2012 05:28:41 am

I just love all these signs and stories you are sharing. They are all amazing just like Al.... Love Ya xoxoxo

Reply
Darlene
5/31/2012 05:34:55 am

Alec really did show us all that you can" see anything" if you just take the time to stop and look. His is a sweet potata! Xoxo

Reply
Andrea
5/31/2012 06:06:09 am

Alec certainately saw with his heart and that's all that mattered to him :)

Reply



Leave a Reply.

    Use igive.com for online shopping and select the Alec Bulmer Benefit Fund as your cause


    Archives

    February 2022
    October 2021
    May 2021
    December 2020
    October 2020
    October 2019
    September 2019
    July 2019
    April 2019
    March 2019
    October 2018
    September 2018
    August 2018
    May 2018
    April 2018
    March 2018
    December 2017
    November 2017
    October 2017
    September 2017
    August 2017
    July 2017
    May 2017
    March 2017
    December 2016
    October 2016
    September 2016
    July 2016
    May 2016
    April 2016
    March 2016
    January 2016
    December 2015
    October 2015
    September 2015
    August 2015
    May 2015
    March 2015
    February 2015
    December 2014
    November 2014
    October 2014
    September 2014
    August 2014
    July 2014
    June 2014
    May 2014
    April 2014
    March 2014
    February 2014
    January 2014
    December 2013
    November 2013
    October 2013
    September 2013
    August 2013
    July 2013
    June 2013
    May 2013
    April 2013
    March 2013
    February 2013
    January 2013
    December 2012
    November 2012
    October 2012
    September 2012
    August 2012
    July 2012
    June 2012
    May 2012

    Categories

    All

    RSS Feed

Powered by Create your own unique website with customizable templates.